Congenital heart defects are the most common birth defect in humans, affecting 1% of the world’s population. There is no cure.
Tag Archives: healthadvocacy
Health Care Transition for Teens & Young Adults
This post is the last in a series dedicated to Health Care Transition. You can review the first post for definitions and background and posts specific to parents & caregivers andContinue reading “Health Care Transition for Teens & Young Adults”
Health Care Transition for Medical Providers
This post is the third in a series dedicated to Health Care Transition. You can review the first post for definitions and background as well as posts specifically for parentsContinue reading “Health Care Transition for Medical Providers”
Health Care Transition for Parents & Caregivers
This post is the second in a series dedicated to Health Care Transition. You can review the first post for definitions and background as well as posts specifically for teensContinue reading “Health Care Transition for Parents & Caregivers”
Health Care Transition 101
This post is the first in a series dedicated to Health Care Transition. Don’t forget to review additional posts specifically for parents & caregivers, teens & young adults, and medicalContinue reading “Health Care Transition 101”
Asking Questions About Your Child’s Medication
A+J Advisory Panel member Stacie Lampkin, PharmD shares her professional advice on asking questions about your child’s medication. For a printable version of this post, please click here. Asking QuestionsContinue reading “Asking Questions About Your Child’s Medication”
Point Pressure: creating a new device for muscle spasticity
Point Pressure is a Barcelona-based medical technology startup committed to helping patients affected by neurological conditions. With their first product, Sura, they are bringing a non-invasive, non-drug treatment for muscleContinue reading “Point Pressure: creating a new device for muscle spasticity”
Unseen: How We’re Failing Parent Caregivers & Why It Matters
The Unseen film follows Jess and Ryan Ronne, a blended family with 8 children, including Lucas, who has profound disabilities requiring total care. Their situation has gotten more and moreContinue reading “Unseen: How We’re Failing Parent Caregivers & Why It Matters”
Children Need Independent Patient Advocates, Too
Your Friendly Advocate recently wrote for Case Management Society of America’s official magazine about the importance of independent patient advocates for the pediatric population. Those who work in adult medicineContinue reading “Children Need Independent Patient Advocates, Too”
